Our Spring newsletter is out now! You
can download it by clicking [here]
Please support Nicola Balfour's
fundraising efforts in the Prudential Ride London to
Surrey 100 on August
4th 2013. Visit her Just Giving page
Zumbathon Fun Day, June 2nd 2013, The Birdbrook Tavern,
Sturmer Road, CO9 4BB. Please join us and help raise
money for SBUK. More details
Please support Team PP in the Great South Run on October
27th 2013, in memory of Miss Phoebe May Knibbs, who lost
her life to Krabbes disease on February 23rd 2013. Visit
the Just Giving page
support 12 year old
Seth Morris in his
fight for Newborn Screening.
Click for more...
Pat Roberts has contributed to
an article published this month in the Journal of Community Genetics:
Screening criteria: the need to
deal with new developments and
ethical issues in newborn metabolic screening.
Alternatively read at the
Journal of Community Genetics
06/07/2012: Save Babies UK welcomes the DoH announcement to introduce a
pilot for screening newborns for a further five disorders from July 2012. However this is too little and too late. The pilot will only cover 60% of babies born in the UK from July 2012. Almost as many children with diseases that could have been diagnosed and treated will go undetected, as those that the DoH
say will be saved.
Read more about the Saving of Lives Through Newborn Screening Celebratory Event,
Westminster 25th April 2012 [here]
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