Latest news

17/05/2013: Our Spring newsletter is out now! You can download it by clicking [here]

17/05/2013: Please support Nicola Balfour's fundraising efforts in the Prudential Ride London to Surrey 100 on August 4th 2013. Visit her Just Giving page [here]

08/04/2013: Zumbathon Fun Day, June 2nd 2013, The Birdbrook Tavern, Sturmer Road, CO9 4BB. Please join us and help raise money for SBUK. More details [here]

22/03/2013: Please support Team PP in the Great South Run on October 27th 2013, in memory of Miss Phoebe May Knibbs, who lost her life to Krabbes disease on February 23rd 2013. Visit the Just Giving page [here]

23/10/2012: Please support 12 year old Seth Morris in his fight for Newborn Screening. Click for more...

12/10/2012: Pat Roberts has contributed to an article published this month in the Journal of Community Genetics: Screening criteria: the need to deal with new developments and ethical issues in newborn metabolic screening. Alternatively read at the Journal of Community Genetics website here.

06/07/2012: Save Babies UK welcomes the DoH announcement to introduce a pilot for screening newborns for a further five disorders from July 2012. However this is too little and too late. The pilot will only cover 60% of babies born in the UK from July 2012. Almost as many children with diseases that could have been diagnosed and treated will go undetected, as those that the DoH say will be saved. Read more...

30/03/2012: Read more about the Saving of Lives Through Newborn Screening Celebratory Event,  Westminster 25th April 2012  [here]

COMING UP...

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