17/05/2013: Our Spring newsletter is out now! You can download it by clicking [here]

17/05/2013: Please support Nicola Balfour's fundraising efforts in the Prudential Ride London to Surrey 100 on August 4th 2013. Visit her Just Giving page [here]

08/04/2013: Zumbathon Fun Day, June 2nd 2013, The Birdbrook Tavern, Sturmer Road, CO9 4BB. Please join us and help raise money for SBUK. More details [here]

22/03/2013: Please support Melanie MacPherson, who is doing the Kiltwalk on April 21st 2013, in memory of her son Wee Jack MacPherson. Visit her Just Giving page [here]

22/03/2013: Please support Team PP in the Great South Run on October 27th 2013, in memory of Miss Phoebe May Knibbs, who lost her life to Krabbes disease on February 23rd 2013. Visit the Just Giving page [here]

12/10/2012: Pat Roberts has contributed to an article published this month in the Journal of Community Genetics: Screening criteria: the need to deal with new developments and ethical issues in newborn metabolic screening. Alternatively, read at the Journal of Community Genetics website here.

06/07/2012: Save Babies UK welcomes the DoH announcement to introduce a pilot for screening newborns for a further five disorders from July 2012. However this is too little and too late. The pilot will only cover 60% of babies born in the UK from July 2012. Almost as many children with diseases that could have been diagnosed and treated will go undetected, as those that the DoH say will be saved. The children who will go undetected will be subjected to lifetime disability or even death.   40% of newborn babies will not be screened. The DoH are estimating 35 children will be saved in 12 months by early detection of their disease. Although past experience shows that this may be an underestimate, nevertheless on DoH estimates, 20+ children with these diseases will go undetected and may be subjected to a lifetime of severe disability or death. No decision has been taken by the DOH on what happens after the 12 month pilot period. Are the DoH going to cancel the programme ensuring that more babies have a life of disability or even die? Many other countries, including some EU countries have screened for these diseases for many years. Save Babies UK continues to ask the question, why is the UK always lagging behind the rest of the world in terms of saving the lives of children?

06/07/2012: 2nd Annual Krabbe Day, 28 July 2012 at Thorpe Park Hotel & Spa, Leeds [read more & contact info]

01/06/2012: Read reports from the 30th Anniversary of the MPS Society, and the Saving of Lives Through Newborn Screening Celebratory Event.

24/05/2012: Our Spring newsletter is out now! You can download it by clicking [here]

30/03/2012: Read more about the Saving of Lives Through Newborn Screening Celebratory Event,  Westminster 25th April 2012  [here]

09/12/2011: Pat Roberts features in The Yorkshire Evening Post [here]

27/11/2011: The Save Babies UK Annual Report for 2010/11 is now available to view [here]

25/11/2011: Black White & Bling - a Christmas Charity event at LA Fitness, Yeadon on December 10th 2011. Click [here] or on the poster below for more details.

21/08/2011: Please support 12 year old Seth Morris in his fight for Newborn Screening. Click for more...

26/07/2011: The Northern Marine Charity Cycle team is making their fifth annual cycle trip to raise money for Save Babies UK. Please show your support at their Just Giving page.

16/07/2011: Nicola and Rob Balfour are doing the Great North Run on 18th September for Save Babies UK. Please show your support by sponsoring them at their Just Giving page.

22/06/2011: We'd like to thank our kind supporters who have been raising funds on our behalf: Mark and Alex who ran the Leeds 10K on June 18 in the pouring rain, and Sarah Dudko and family for their tremendous car boot sale effort.

12/05/2011: We've just published our first official newsletter. You can download it by clicking [here]

09/04/2011: The new PANS (Patient Advocates For Newborn Screening) website is now live...  PANS

31/03/2011: Pat Roberts reports from the LSD World Symposium, 15-18th February 2011. Read more...

28/02/2011: Rare Disease UK have published a new report outlining recommendations for a strategy for rare diseases:  Improving Lives, Optimising Resources: A Vision for the UK Rare Disease Strategy.

29/01/2011: Kara Sennett will be making a charity parachute jump to raise money for Save Babies UK, in memory of Frankie Forgione who died of Krabbes disease on 1st January 2011.  Please show your support by sponsoring Kara at her Just Giving page.

23/01/2011: Save Babies UK would like to offer our congratulations and good wishes to Jason Manford and his wife Catherine on the birth of their new daughter.

30/12/2010: Executive Director Pat Roberts spoke at the Children's Health Conference in November 2010. Read more...

11/12/2010: Rare Disease UK have published a new report: Experiences of Rare Diseases: An insight from patients and families.  Read more...

24/10/2010: The Save Babies UK Annual Report for 2009/10 is now available to view [here]

10/10/2010: Grateful thanks and congratulations to the Blazing Saddles 2010 team, who successfully cycled from Bratislava to Budapest to raise funds for Save Babies UK.  You can still show your support by visiting their Just Giving page.

01/10/2010: Don't forget that you can watch our Patron, Jason Manford,  as presenter of The One Show on BBC1, and on Eight Out of Ten Cats on Channel 4.

16/08/2010: We would like to wish Jason Manford the very best of luck as he starts as presenter of The One Show on BBC1.

13/08/2010: Marking Newborn Screening Awareness Month in September, a team of stalwart pedallers are cycling from Bratislava to Budapest to raise funds for Save Babies UK.  Read more...

24/07/2010: Congratulations and thanks to Anne Parker, who has now completed her sponsored walk along Hadrian's Wall and raised £1000 for Save Babies UK. You can still donate by visiting her Just Giving page.

26/06/2010: Executive Director Pat Roberts gave the keynote speech at the PerkinElmer Newborn Screening Conference in Finland on June 21-22. Read more...

06/06/2010: Pat Roberts will be giving the keynote speech at the PerkinElmer Newborn Screening Conference in Finland on June 21-22.

28/05/2010: Congratulations to Jason Manford, who was officially announced as the new presenter of The One Show this week. [BBC]

07/05/2010: Our patron Jason Manford is currently on tour in the UK, and will be donating a share of his profits to us. Our team will also be collecting donations at some of the venues on the tour - come and say hello!  Read more...

01/05/2010: Thanks to the Ladies Association of British Barbershop Singers (LABBS) who have adopted us as their charity for 2010.

05/02/2010: Save Babies through Screening Foundation are pleased to announce the formation of the Patient Advocacy for Newborn Screening Group (PANS) in the United Kingdom. Read more...

06/01/2010: Thank you to everyone who joined us at the Sing To Save Babies concert in December. We raised £2500!

02/09/2009: Save Babies UK congratulates Malena and Martyn Bathurst on the birth of their daughter Lilia, born on 15th August. Lilia is sister to Lucas who has Krabbe Leukodystrophy.

01/09/2009: September is Newborn Screening Awareness Month. Please take a few moments to learn more, or help support our efforts by making a donation.

25/08/2009: Save Babies UK would like to offer our congratulations and good wishes to Jason Manford and his wife Catherine on the birth of their twin daughters on 20 August 2009.

23/08/2009: Save Babies UK would like to welcome the arrival of our Vice Chair's new baby boy Oliver David MacPherson, who was born on 13th August 2009 and offers warmest congratulations to Melanie and Scott.

12/06/2009: Added Evie Sugden to the Family Stories section.

01/05/2009: Pat Roberts reports from the International Society for Neonatal Screening Regional Meeting in Prague, 26-28th April 2009.

31/03/2009: Karen MacPherson is running the Women's 10K race in Glasgow to raise funds for Save Babies UK. You can sponsor Karen by visiting her Just Giving page.

22/03/2009: read all about our recent event: Two Big Boys, in Loving Memory of Two Little Boys.

18/03/2009: you can now support us by making a donation at Just Giving.

08/03/2009: Krabbes Disease and Leukodystrophy definitions added to the site.

02/03/2009: text on Home Page updated.

21/02/2009: Added Madison's Story to the Family Stories section.

30/12/2008: Fancy Dress Football tournament at the Goals Soccer Centre, Kirkstall. Please visit our EVENTS page for more information.

18/11/2008: Save Babies Through Screening Foundation UK is thrilled to announce that Jason Manford, TV comedian and entertainer, has kindly agreed to become our Patron. We are overwhelmed that Jason is lending his valuable support to our work. Welcome to the team, Jason!

03/11/2008: Added Gwen's Story to the Family Stories section.

18/10/2008: updates to About Us page. Jack's Story added to Family Stories section.

07/10/2008: Two Big Boys, in Loving Memory of Two Little Boys. Please visit our EVENTS page for more information.

29/09/2008: Announcing our first two official fund-raising events: the 2nd Annual Jack MacPherson Race Night in Glasgow, and a Halloween Fun Day in Yeadon.

16/09/2008: We are delighted to announce the launch of our new UK website, and mark the 10th anniversary of Save Babies in the USA.